2 Weeks In...

Day 14 of being in this hell hole also known as UCL hospital. I have been here for two weeks now and todays the first day I've been well enough to finally to get on my laptop and do a bit of typing away for a couple of hours. I'm not going to lie, these past four weeks have been pretty dreadful and I have finally ended up back here in my specialist hospital for more treatment. If I take you back to a couple of months, when my JEC also known as a feeding tube into my intestine become dislodged which caused huge amounts of pain, but then nature took control and it eventually made it fell out. Since that day I was waiting for surgery for a new one to be put in and another chunk of my intestine taken for a biopsy, due to the last one coming back abnormal. However...long story short, but I waited and waited and unfortunately a couple of months went by, without no nutrional feeding which eventually made me very poorly and lost so much weight that they are now unable to do the surgery, as I wouldn't make it through...yes, proper rubbish luck right there. I then saw my consultant in clinic who couldn't believe the mess I was in. She said I had to be admitted as soon as possible because I was in a critical state and my organs were at risk of starting to shut down. I finally got a bed up here at UCL where they put a PICC line into my arm, (a more permanent line into my blood stream) and I've been started on TPN. (Intravenous Parental Nutrition) basically getting fed straight into my bloodstream. It's very high risk, and when I had this a couple of years ago I got an infection from it and made me very poorly, so this time I'm sleeping wth my eyes open! My bloods were all other the place and my white blood cells were low but they believe this has happened due to maturation and hopefully with TPN they should improve. So I'm currently attached to a stand pretty much every second of the day, but pushing it around is a work out in its self! The plan was to be on the TPN for four weeks and then to be should be strong enough to have the surgery however since being in here the situation has changed, and they're talking about possibly going home with TPN for a couple of months and then coming back for the surgery. I must admit I a bit annoyed as going home with it isn't straight forward, as they have to involve district nurses etc but if it has to be, then I don't have a choice and I've just got to get on with it and come out the other side! Also since being in here they're trying to get the pain under control as well as the sickness as they've both got really bad the last couple of weeks. Apart from that, thats all to report at this stage. Still on a very long road ahead but I've just got to keep positive and keep going! Friends and family have been amazing, and they've kept me going. Below is my brother Matt and I standing by the only good thing about this place and thats the view, being on the 13th floor has its perks!...if thats even possible! Have a good week everyone and I shall keep you all up to date as best of possible x