Week 5...

One week on...and I'm still here at UCL. Yes...it has been 5 weeks, and yes I have most definitely had enough! It really has been a right rollar coster this past week, properly due to the fact I haven't really slept well since I've been here, because hospitals really aren't the quietist of places to sleep! With new patients arriving, nurses chatting and ob's being taken at 2am...Yes that is correct!...2am! Tomorrow I'm going down to have a dilation done, into the opening of my intestine. If you remember I had botox done last week or so, but when they were in there they realised actually how serious it was, and they wanted me to have this done now. This dilation is when they infant a balloon inside, into the opening of the intestine to keep it open. One good thing about this, is that I won't have to have the botox done every three months as this is semi-permeant...yay to less endoscopes!...they're horrid! Hopefully this will help the nausea and enable me to have a little bit more oral too. Also, they finally got the results back from my full thickness biopsy which was taken last year! last year?! Wheres it been all this time...in a pickling jar or something?! Anyway, they have said its comes back abnormal and they want to take another full thickness biopsy when I have the surgery. I was been informed that the surgery will be done within the month hopefully, and it's being done at East Surrey Hospital. This is the surgery for the new JEC, another biopsy and also taking out a part of my intestine where it has narrowed so much from scar tissue causing problems this is called adhesions. I'm really not looking forward to this but it has to be done! But at least it's going to be done at my local hospital. This week really has been tough. Sometimes I feel I'm the only one going through all this, and there's no where to go. But I am lucky enough to have some lovely friends, who have similar conditions to me so we do tend to compare on a regular basis! I would hate to think there are people out there, who is reading this and doesn't have anyone to turn to? Because its a lonely condition and very limiting. But you've got to keep your head up high and keep trooping on, because there is always light at the end of the tunnel. I really do feel that you must set yourself goals, even if its as simple as getting strong enough to go on a little trip somewhere! Because, for me anyway if I know I have something to look forward to it always helps and keeps me motivated too. If you're reading this and want to chat or discuss anything I'm more than happy to listen and help, you can find my email address on my contact details page. This weeks picture below is when my brother Matt and the lovely Kate came to visit me! I hope everyones having a good week! keep smiling x